When You Find Out Your Baby Has Down Syndrome
posted by McKenna on September 30th, 2007I wish I could tell you in a five step article what happens when you find out your baby has Down syndrome, but every situation and every person is so different that the best I can do is tell you my experience.
On the day of our sonogram to find out the sex of our very first child, my husband, the two first-time grandmas-to-be and I anxiously waited in the waiting room for my sonogram. We first had the obligatory weigh-in, blood pressure check, and “how have you been feeling” with the nurse. Then the doctor came in. She asked me how I was feeling and I explained to her my eagerness to find out the sex of our baby. She first wanted to share with me the results of my quad screen. I’ll never forget her words, “It looks like your baby has an elevated chance of having Down syndrome.” Everyone in the room was shocked, except for me. I knew how unreliable those screening tests were, besides I was only 21 years old! I kept reassuring my husband that those tests meant nothing. We went back to the waiting room, and I was still my upbeat perky self waiting for the sonogram tech to call us back. I wanted my mini-McKenna…I wanted a girl so badly!!
Finally, the sonogram! The technician was conducting the sonogram and measuring all kinds of things on the baby. I kept thinking to myself, “come on already, look between the legs!” The technician then told us she wanted the doctor to look at some things. The OB walked in, looked at the screen, and said, “I have to be honest. This concerns me” as she gently touched my leg. Not only did my quad screen point to the baby having Down syndrome, but there were many physical findings on the sonogram as well. Through a cloud of tears and emotion, we found out we were having a girl, but no longer was she going to be a mini-McKenna. She was going to be different than me. She wasn’t going to look like me. She wasn’t going to act like me. Along with my picture with the arrow pointing between her legs, I was given sonogram pictures with measurements of the back of her neck, her femur, her nasal bridge…all measurements that said my baby wasn’t going to be normal. We followed up with a series of level II sonograms. Although we never had the amnio which would have confirmed Down syndrome, the doctors were sure my baby had Down syndrome when they later found a heart defect that is almost exclusive to babies with Down syndrome. My husband and I held on to the small chance that she didn’t have Down syndrome, but tried to prepare for that possibility.
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