Comments on: Tube Feeding Your Child http://www.themomcrowd.com/tube-feeding-your-child Thu, 09 Feb 2012 20:58:25 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: shari http://www.themomcrowd.com/tube-feeding-your-child/comment-page-1#comment-118917 shari Thu, 10 Sep 2009 21:10:03 +0000 http://www.themomcrowd.com/tube-feeding-your-child#comment-118917 Hi, I found your site searching for hospital feeding programs.I was just wondering if they let you stay in the hospital w/ your child,my son is 2 and still has his g-tube and is completely dependent on it.His thereapist said she wants him to do a hospital feeding program but we are not allowed to be w/ him,which I do not like,so was just wondering how they handled it at the hospital you went to. Hi, I found your site searching for hospital feeding programs.I was just wondering if they let you stay in the hospital w/ your child,my son is 2 and still has his g-tube and is completely dependent on it.His thereapist said she wants him to do a hospital feeding program but we are not allowed to be w/ him,which I do not like,so was just wondering how they handled it at the hospital you went to.

]]> By: chandra phillips http://www.themomcrowd.com/tube-feeding-your-child/comment-page-1#comment-117837 chandra phillips Thu, 03 Sep 2009 09:27:47 +0000 http://www.themomcrowd.com/tube-feeding-your-child#comment-117837 My son was on a feeding tube for 4 years. At birth he was diagnosed with down syndrome he had failure to thrive and asparation he a g j tube put in this allows the food to by pass the stomach as he also had gerd about a month after birth they found he had blockage of the duodenum he had surgery he also had heart surgery. at about the age of 1 we changed from a g j tn a g tube i noticed he was not sleeping a lot maybe 3 hours a night and became worried the prob was he was hungry he was on a drip and never felt full i did a bullus feed and he was a happy baby. I live in Fl i know that All childrens in st petersburg fl has an intensive feeding therapy and they also have a web site that has some good tips. Conner my son has a dietician and she said a lot of times down syndrome peoples taste buds are not like ours they like stronger tastes. I find conner likes very sweet or tangy. when he was not gaining weight the dietician had us add a tsp of veg oil to his pediasure per meal 1 tsp is 120 cal best of luck My son was on a feeding tube for 4 years. At birth he was diagnosed with down syndrome he had failure to thrive and asparation he a g j tube put in this allows the food to by pass the stomach as he also had gerd about a month after birth they found he had blockage of the duodenum he had surgery he also had heart surgery. at about the age of 1 we changed from a g j tn a g tube i noticed he was not sleeping a lot maybe 3 hours a night and became worried the prob was he was hungry he was on a drip and never felt full i did a bullus feed and he was a happy baby. I live in Fl i know that All childrens in st petersburg fl has an intensive feeding therapy and they also have a web site that has some good tips. Conner my son has a dietician and she said a lot of times down syndrome peoples taste buds are not like ours they like stronger tastes. I find conner likes very sweet or tangy. when he was not gaining weight the dietician had us add a tsp of veg oil to his pediasure per meal 1 tsp is 120 cal best of luck

]]> By: Karen http://www.themomcrowd.com/tube-feeding-your-child/comment-page-1#comment-117387 Karen Mon, 31 Aug 2009 18:12:10 +0000 http://www.themomcrowd.com/tube-feeding-your-child#comment-117387 i have a question for u..my son has a peg tube at the moment now i wopuld prefer him to get the button because im afraid he will pull it out..did ur daughter have to go thru surgery to get the button or they replaced it just like that? i have a question for u..my son has a peg tube at the moment now i wopuld prefer him to get the button because im afraid he will pull it out..did ur daughter have to go thru surgery to get the button or they replaced it just like that?

]]> By: Becca http://www.themomcrowd.com/tube-feeding-your-child/comment-page-1#comment-117176 Becca Fri, 28 Aug 2009 23:18:48 +0000 http://www.themomcrowd.com/tube-feeding-your-child#comment-117176 My little brother has a G-Tube and a J-tube. He has down syndrome and asperated as a baby, so he wasn't able to eat. Currently he will be starting a feeding clinic so they can teach him how to chew and swallow. He's on a Kangroo Joey Pump on Continuious feeds for the J-Tube. After awhile he got used to it, but his poor skin is so raw from the tape we have to put on the gauze. It does get old when people stare at him, especially when he's in his wheel chair, he's 4 and cant walk yet, due to low muscle tone. but he's getting therapy for all of it. My mom will say to people -Hi there, his name is Chris- When they stare. So, that usually gets them to blush and walk off. My little brother has a G-Tube and a J-tube. He has down syndrome and asperated as a baby, so he wasn’t able to eat. Currently he will be starting a feeding clinic so they can teach him how to chew and swallow. He’s on a Kangroo Joey Pump on Continuious feeds for the J-Tube. After awhile he got used to it, but his poor skin is so raw from the tape we have to put on the gauze.

It does get old when people stare at him, especially when he’s in his wheel chair, he’s 4 and cant walk yet, due to low muscle tone. but he’s getting therapy for all of it. My mom will say to people -Hi there, his name is Chris- When they stare. So, that usually gets them to blush and walk off.

]]> By: Debra Mozqueda http://www.themomcrowd.com/tube-feeding-your-child/comment-page-1#comment-105347 Debra Mozqueda Tue, 30 Jun 2009 14:41:49 +0000 http://www.themomcrowd.com/tube-feeding-your-child#comment-105347 Hello again. I was on here in March looking for someone who might know what I can do or try differently. My baby girl is now 5 months and 2 weeks. She is growing and gaining the proper weight. I have introduced her to baby food and she loves fruits. She especially loves the rice cereal with apple. I know were supposed to try the veggies but if she loves fruits and can eat a small portion of it I'm happy. Also I was having problems with her drinking from the bottle. If I give her water through the bottle she'll drink the whole thing. If I give it to her with the dropper she open her mouth so I can give her some and if I give it to her in a cup she'll almost want to drink it in an instant and gets frustrated because she would love to just pour it over herself. I love that, but she still won't really drink out of the bottle if my husband or I am giving her formula. She barely even smells it and just arches her head, screams, cries and hits the bottle as hard as she can. She will also close her mouth tight so that we can't even try and put the nipple in her mouth. Our daughter has been to Genetic doctors and they say that they can find anything wrong with her. They simply cannot find an answer to why she won't eat through the bottle. We try giving the bottle to her in every feeding and she'll maybe take an ounce in a half to two ounces but other times she just doesn't want to see the bottle. Once she sees the bib and the bottle she just starts crying and I know she's not hurting because once the bottle is out of sight them she's happy and giggly. I'm just really worried because in August I might not be able to stay with the kangaroo pump. They want me to feed her bolous feedings but it's impossible because she has reflux and because she cries a lot and moves a lot and it will take forever for her to finsh eating. I just wish, hope and pray that maybe someday she will start taking the bottle or that she can just start eating solids. Please if someone knows someone, has passed through this or knows what I can do please do let me know. I am desperate. Hello again. I was on here in March looking for someone who might know what I can do or try differently. My baby girl is now 5 months and 2 weeks. She is growing and gaining the proper weight. I have introduced her to baby food and she loves fruits. She especially loves the rice cereal with apple. I know were supposed to try the veggies but if she loves fruits and can eat a small portion of it I’m happy. Also I was having problems with her drinking from the bottle. If I give her water through the bottle she’ll drink the whole thing. If I give it to her with the dropper she open her mouth so I can give her some and if I give it to her in a cup she’ll almost want to drink it in an instant and gets frustrated because she would love to just pour it over herself. I love that, but she still won’t really drink out of the bottle if my husband or I am giving her formula. She barely even smells it and just arches her head, screams, cries and hits the bottle as hard as she can. She will also close her mouth tight so that we can’t even try and put the nipple in her mouth. Our daughter has been to Genetic doctors and they say that they can find anything wrong with her. They simply cannot find an answer to why she won’t eat through the bottle. We try giving the bottle to her in every feeding and she’ll maybe take an ounce in a half to two ounces but other times she just doesn’t want to see the bottle. Once she sees the bib and the bottle she just starts crying and I know she’s not hurting because once the bottle is out of sight them she’s happy and giggly. I’m just really worried because in August I might not be able to stay with the kangaroo pump. They want me to feed her bolous feedings but it’s impossible because she has reflux and because she cries a lot and moves a lot and it will take forever for her to finsh eating. I just wish, hope and pray that maybe someday she will start taking the bottle or that she can just start eating solids. Please if someone knows someone, has passed through this or knows what I can do please do let me know. I am desperate.

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