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My Most Favorite Books About Down Syndrome

by McKenna on November 17, 2008
category: 0 – 1 year (baby),Down syndrome,Product Reviews,Special needs

When we found out Darah most likely had Down syndrome during my pregnancy, I immediately started my quest of finding out anything and everything there was to Down syndrome.  I am a research junkie and I have purchased more than a few books about Down syndrome.  I would love to share with you  my most favorite books about Down syndrome.  I strongly recommend any new or expectant parent of a baby with Down syndrome add these books to their library or at the very least check them out from their library.  Our local Down Syndrome Association has a library for parents to borrow books from; yours may have the same!  These books also make great gifts for grandparents,  extended family members, child care providers, etc… of babies born with Down syndrome.

Common Threads coverweb_2840.jpg

  • I have the coffee table version of this beautiful book, and I can’t wait until my children are old enough for me to actually keep it out without being destroyed.  This book was given to me after Darah was born and I was immediately encouraged by the beautiful pictures and stories.  I did not learn a whole lot about the medical issues or the developmental delays in my daughter from this book.  I learned the more important things. I learned how beautiful the life of a person with Down syndrome is and this book helped me so much during my early days of grieving.

Roadmap to Holland roadmap.jpg

  • I wish I would have had this book when Darah was first born!  Jennifer Graf Gronberg writes about the first two years of raising her son with Down syndrome.  It is honest, insightful, and encouraging!  Every new parent needs to read this book! This book’s title is inspired by the incredibly well written depiction of having a child with special needs, “Welcome to Holland.“  I met Jennifer at a conference and she is such a genuine person.  My children stole me away from her, but I would have loved to have talked with her longer than our quick introductions!

Babies with Down Syndrome

  • babies_with_down_syndrome3.jpg My wonderful local Down Syndrome Association mails this book to all new or expectant parents and I got my copy before Darah was born.  This book helped me learn everything there was to know about Down syndrome!  It clarifies common myths, explains in detail what Down syndrome is and how it occurs,  explains the different medical issues sometimes associated with Down syndrome, has adjusted weight and height charts for children with Down syndrome, talks about what medical exams a child with Down syndrome needs and when, and was basically my go-to book for a while with anything concerning Darah.

Early Communication Skills for Children with Down Syndrome early_communication_skills_for_children_with_down_syndrome.jpg

  • The speech pathology student in me has to declare that this book is a must have!  I had the pleasure of attending Libby Kumin’s conference in Atlanta and again in Kansas City at the National Down Syndrome Congress Convention and she is the most knowledgeable, insightful Speech Pathologist I have ever met.  She seriously knows her stuff!  This book will really help you understand your child’s speech development and the best way to help them achieve speech and language milestones.  There are a lot of pre-speech activities in this book and it really is incredibly informative for parents of newborns all the way up to teenagers with Down syndrome!

Gross Motor Skills in Children with Down Syndrome gross_motor_skills_in_children_with_down_syndrome.jpg

  • This book has awesome milestone charts that tell you when you can expect your child with Down syndrome to achieve different milestones.  Even though you should not compare your child to any child, it is helpful to know an average age that you can expect certain milestones.  At this point in our Down syndrome journey, I am pretty laid back about developmental milestones, but during Darah’s first three years I was all about achieving the next milestone as quickly as possible.   This book kept me focused on what step came next as we got closer and closer to Darah learning to walk and postwalking skills.  It gives practical exercises to do with your child to strengthen his or her core muscles and help their gross motor development.

Fine Motor Skills in Children with Down Syndrome fine_motor_skills_for_children_with_down_syndrome.jpg

  • This is another great book to add to your library early.  I don’t like the layout as much as Gross Motor Skills in Children with Down syndrome, but it is still incredibly informative.  I have used this as my go-to resource for exercises, activities, and ideas to help Darah’s fine motor development.

I Can, Can You? 

  • i_can_can_you.jpg I love this book because it is a board book for Darah with children who all had Down syndrome like her!   All of Darah’s board books had children with the standard 46 chromosomes and it made me happy to have her chewing and reading a book that had kids who had 47 chromosomes like her!

We’ll Paint the Octopus Red well_paint_the_octopus_red.jpg

  • I checked this book out at the library.  Since Darah was our first child, we did not have to introduce “Down syndrome” to her siblings when she was born.  However, I love this book and think any parent who has older children needs to give this to them after finding out their younger sibling has Down syndrome. It is endearing and encouraging for siblings of a child with Down syndrome.

Do you have any favorite books about Down syndrome? What do you love about them? 

4 Responses to My Most Favorite Books About Down Syndrome

  • Gravatar November 17, 2008 @ 10:05 pm

    [...] My Most Favorite Books About Down Syndrome Social Bookmarking This entry was written by Steve, posted on November 17, 2008 at 8:34 pm, filed under Baby, Blog Scan and tagged least-check, library, syndrome, syndrome-add, their-library. Bookmark the permalink. Follow any comments here with the RSS feed for this post. Post a comment or leave a trackback: Trackback URL. « How many American understand who the typical woman getting an … [...]

  • Gravatar
    Comment by jennifergg
    November 18, 2008 @ 9:52 am

    This is an awesome list! I’m very happy there are so many really good resources for parents of kids with DS. Thanks for including me on the list!

    (And? I wish we could have spent more time together, too…plus, I wish I had my kids with me too. Oh, well! Maybe next year!)


  • Gravatar
    Comment by Jocelyn
    April 18, 2009 @ 11:32 pm

    This looks like a great list for parents. Just wanted to let you know that there is a new board book out called ‘My Up, Down and All Around Book’ by the same author. I also love to give out ‘My Friend Isabella’ to all my friends kids to help them understand a little bit about my daughter. Best wishes.

  • Gravatar
    Comment by martine mc kenna
    November 16, 2012 @ 5:43 pm

    i have a baby with downs, he is 12 weeks old. i didnt know until he was born, it was a huge shock. to look at him you wouldnt think he had downs, but now it is becoming more prominant it scares me, im terrified, i love my son so much it is unreal. he also has hirschsprungs disease and has to go in for a an ilosotomy reversal, again im terrified as i dont no what the outcome will be, ive been advised to join groups but i cannot bring myself to do so as i dont, (and not to sound cruel) i didnt want to see a downs adult as i didnt want to see my sons future i still dont know what to do, im still in denial.

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